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Linda Seybert 7-28-2008
I would really like to thank Mark for his prompt response to my concerns regarding DVT following my recent Prodisc replacement. He directed me to some DVT web-sites. DVT is a serious matter and requires immediate medical attention. Since I have already experienced one clot following my recent surgery, I know what I need to do. Go to the doctor now and make sure I do not have a clot in the pelvic area. Thank you Mark for your help. Let me know if anyone else out there has experienced set-backs from the prodisc procedure. And also, how long will it take before I know if the procedure has worked.
Linda 7-26-2008
I had the Pro-Disc replacment at the L5/S1 one month ago. I immediately noticed less pain in my lower back. 10 days after the surgery I was readmitted due to blood clots in the legs. When I got out of the hospital I began to notice knowt in my cakves and gluts, probably from inactivity. Incrediabely I could sit without pain for the 1st time in years. A few days later the aching and burning returned to my lower back and my gluts and groin area were bruised and painful. The doctor claims I pulled a muscle, but the symptoms are the same as before the surgery. Can a pulled muscle cause burning pain while sitting and what should my expectations be for recovery?
ashlei aagain from below 7-21-2008
if anyone can help i am leaving my email for you i know i shouldnt but the pain is unbearable and i want off the meds and just be me again with a 3 yr old at 24 yrs of age i shouldnt be going through this so all who have oppinions please email me at ashleihd@aol.com all comments welcome!!!thanks again i am in miami or even if i have to go out of state whatever that is fine
ashlei 7-21-2008
I have ha 2 surgerys L5S1 fusion then they took out the hardware 14 months later and now my L4L5 vertebrae has slipped and now CAN NOT FIND ONE DOCTOR to help if anyone knows/has and idea on what to do please help. just want the pain gone the first surgery was way wrong never should have done it PLEASE HELP... i hope people read this i am lost. ---ashlei---miami,fl---
KC-10 driver 7-18-2008
Oh yeah, nice NAvion. A friend of mine had one with an IO-550 and 100 gallons on board. Great family cross country aircraft!
KC-10 driver 7-18-2008
WOW! My doctor told me about this site and iSpine. INCREDIBLE! Thanks for all you do. You'll be hearing from me soon.
KC-10 driver from KC
Gal from Kalamzoo 7-4-2008
Mark, just checking in to tell you that I'm still doing great. I can't thank you enough for all your help. Without it, I'd still be disabled, depressed, medicated, etcetera. (You know the drill!)
Keep doing what you are doing - you saved my life!
Keri from Kalamazoo
ok, got the best neurosurgeon in Reno... now what... 6-5-2008
After nearly a year of maddening pain in my low back and down both legs, I finally have the 2nd mri that tells the truth: disc at L5/S1 is falling apart and pushing out on the s1 nerve roots bilaterally... I was just hoping for some kind of "disc trim" same day surgery and on my way... anything to get rid of this awful way of living on nerve/pain meds.
Doc shows me this ProDisc thing(aparrantly his TDR device of choice) which frankly scares the stuff out of me but has sparked a feverish search on the internet.
What's the pros n cons of the different TDR products?
I've been reading these posts and wonder, are there any answers to peoples questions? I really want some definitive information on the difference between the ProDisc and the Charite... Can anyone help me? I'm 33, mother of four, entrepenuer in my first (and very successful) year of business... (PS, got the back injury moving the new office furniture in!)
I can't be broken!!!
I want the very best treatment from here on out (before surgery). I've seen and heard the horror stories, if anything, post me back on the success of both TDR's???????
Mendy Mitchell 5-6-2008
Hi Mark just wanting to check with you to see how things are going. Chet is doing great. It will soon be 1 year and he doesn't regret it at all. He is building houses, fishing and whatever else he wants to do. Best thing he ever did. His doctor was on ESPN doing 1 ADR he met Chet at WalMart and told Chet it was only one, nothing like what Chet had done, he asked Chet if he could keep up with him to see how he does. Every doctor here wants to see Chets scar they can't beleive it is so small, here they cut you front and back. Thanks for all the help you gave us. Talk later Mendy
mmglobal / ispine.org 4-30-2008
Hey Brian (2 posts down).... thanks for posting. Many of you will remember skullman... he posted on the spine forums and was one of the VERY early charite' patients.... Great news Brian... thanks for the update!
Mark
Dan 4-29-2008
Nice site, will try ispine.org forum also. Any use for Glucosamine and Chondroitin in recovery?
gpn 3-28-2008
Hey mark I am 5 1/2 years after my chartie 111 replacement & have zero pain I don't even think about it unless someone reminds me and ask how my back is. I was in great pain for 13 years & now it's all gone, thanks for your help mark............Brian scully simi valley ca,
Lorna 3-22-2008
Attention Al Guapo New I-Spine poster! You are me (Does that make sense)! Read my patient story on this site. I can only sleep on my right side or my foot/ leg pain starts. I am also someone who has constantly changing symptoms different areas of my feet/legs/buttocks will burn/cramp on any particular day. Mark Please pass my email address to Al Guapo. Thanks
Pam- Hybrid Surgery 3-20-2008
We need your help !!! Any alternatives or treatments to alleviate or better yet abolish back/leg pain, please feel free to email me at -- pamelakw@att.net
Pam- Hybrid surgery 3-20-2008
Hubby had ADR L4/L5 and fusion of L5/S1 and it has failed. Now he has mind blowing radiating pain down his legs and his back is in worse shape than he was before surgery. Injections, Tens unit, PT, and heavy(Narcs)meds, that are just as bad for him, he has been to so many doctors that we both have an awful time try to remember who we have seen for what ? Too all that are thinking of ADR surgery, it should be THE LAST RESORT !!! If anyone has any helpful info or advice , we would love to hear from you
MK 3-14-2008
please keep me updated!
donnie 3-13-2008
sacordosis-having skin rashes
elizabethhoule seaforth ontario canada 2-10-2008
HI TO YOU ALL THERE ON SITE PLEASE DONT GIVE UPL NO GOD SEES ALL THINGS AND L NO THAT HE WORKS THROW POEPLE L FOUND A WEB SITE WWW.LOWBACK CLINC.COM IT IS IN TORONTO CANADA IT IS LASER SURGURY 80 PER CENT SUCCESS RATE WHICH IS BETTER THAN BACK SURGURY L WAS TOLD 20 PERCENT OR LESS SO L AM GOING THERE ON WEDNESDAY FEB 13 2008 L AM GOING TO DO THIS AS IT IS ONLY 5OOO.00 THEY TOLD ME L WILL BE PAIN FREE L WILL POST MORE INFORMATION ON THIS AFTER WEDNESDAY MY EMAIL ADDRESS ELIZABETHHOULE@MSN.COM IF ANY ONE NEEDS TO COME TO CANADA L WILL HELP YOU OUT HERE L CANT GIVE MONEY AS L AM SO BROKE FROM THIS AS L HAVE BEEN IN PAIN 13 YEARS L HAVE HAD SURGURY AND L NO ITS THE DOCTORS FAULT AS HE DID IT WRONG SO HES TO BLAME L REALLY FILL FOR ALL OF YOU L NO THIS IS HARD AS L NO MY PAIN IS 24 /7 ALL DAY AND NIGHT L AM SO TREID OF ALL OF THIS SO IF ANY ONE HAS MORE INFORMATION ON LASER LASER SURGURY PLEASE CONTACT ME ON THIS NEED ALL INFORMATION L CAN GET THANK YOU TO WHO EVER PUT THIS SITE UP BUT IT NEEDS TO BE UP DATED AND LINK TO OTHER SITES SO IF WE ALL HELP OUT ON THIS WORK TOGHTYER FOR A PPAIN FREE LIFE IT WOULD BE GREAT LOVE TO ALL ELIZABETH HOULE
Mary 1-23-2008
I need to know of any surgeons in WA state who are doing ProDisc surgery
(lumbar)
gary/ispine 1-21-2008
near as i can tell i haven't posted here in about 2years, sorry for the delay, i'm a 2-level prodisc trials patient with surgery in july of 2002, so coming up on 5 1/2 yrs post op.WOW is about all i can say, still lumbar pain free, no meds, can't tell when it's going to rain, it's been an unbelievable experience so far, no restrictions, i can do whatever i want when i want, truely amazing, although i still remember my 29year plight of lumbar, leg pain, i'm a tried and true advocate for disc replacement surgery for those who are candidates! WOW {:--)
gary/ispine 1-21-2008
near as i can tell i haven't posted here in about 2years, sorry for the delay, i'm a 2-level prodisc trials patient with surgery in july of 2002, so coming up on 5 1/2 yrs post op.WOW is about all i can say, still lumbar pain free, no meds, can't tell when it's going to rain, it's been an unbelievable experience so far, no restrictions, i can do whatever i want when i want, truely amazing, although i still remember my 29year plight of lumbar, leg pain, i'm a tried and true advocate for disc replacement surgery for those who are candidates! WOW {:--)
Backhurts 1-18-2008
Thanks so much for this website! I've been told by my doctors for years that I have no hope, but I see people here with situations similar to mine who have found relief.
Thank you!
M.O.
tenna 1-7-2008
looking for a doctor for my father he is an lower extermites amputee
tenna 1-7-2008
looking for a doctor for my father he is an lower extermites amputee
Hercules busby 1-1-2008
I would like information on the disease, sacordosis, and any updates if any. thanks.
sydeliz 1-1-2008
I saw on here that someone had surgery done by Dr. Sossan in Norfolk, NE and everything went well. Let me tell you that my mother had him do surgery and she died. When we took her into the ER, a medical persennel there risked their job to tell us no to let that man ever touch her again. He has screwed up so many patients that no doctor will ever touch them again because he has them so messed up. Two weeks after he messed up my mom he was doing a surgery on another lady and he perforated her bowel too. She died and he has since been forced to retire in Nebraska but may still have an office in New York. Check out your doctor thoroughly first!!!
KSEA 10-23-2007
i had a cervical discectomy with fusion due to a work related injury, well 3 weeks prior to surgery i was rearended in a auto acccident, now i still have neck pain 3 months after surgery, who is liable? workers comp or the insurance company whos person hit me?
Thelma, Dr. Bertagnoli 3 level Prodisc 08.2003 9-28-2007
Mark, I just finish getting caught up on iSpine and I am very sorry to hear about Diane's ordeal. I wish her contined healing and success. It is incredible how things have changed in 4 years! I also wish you continued success. We will talk later about getting my profile online.
Jen 9-19-2007
I have just been diagnosed with a blown disc l4-l5. I was told I needed injections first and then possibly a fusion. What am I in for and will the pain go away.
Esther 9-4-2007
Hi Mark,
Remember me? I am Lorna's auntie Esther, I met you in Munich.
Just been reading your bit about Lorna. I have been in contact with her since our return from Munich and each time I speak to her she always is able to tell me about something else she can do that, if not for her surgery and the wonderful support from both the Alpha Klinic and yourself, she would not have been able to do this time 6 moths ago. She tells me of going out with Alan, walking with Lily and supporting the boys in all their activities, its wonderful. As her Scottish aunty I feel overjoyed to hear her tell of her achievements, I can only guess what her mum and dad feel, nothing can express our joy. So, to echo her mums words, thank you all from the bottom of our hearts.
Esther.
wife of suffering husband 9-4-2007
adrian...you're not alone, bless your heart. Sometimes my husband is so bad he says he wishes he was dead, or at least paralyzed so that he won't feel anything. He's only 41 and we have two young'uns. Poor guy can't even run around the yard with his kids. It's really affected the whole family.
Kara Hanson 8-29-2007
I just wanted to let everyone out there that is suffering with DDD that their is hope! the disc replacement )charite) is a great option if you are a good candidate and have a qualified surgeon. Im undergoing the procedue on Sept 10 so please keep me in your prayers. Ill keep you posted on my progress.
Chet Mitchell 8-27-2007
Hi Mark
I have not forgotten about you and all you did for us, one day shortly I hope to sit and write Chet's story. Thanks for everything we could not have made without you. We talk about you all the time. Chets surgery was a great success, we just drove about 1400 miles this weekend Chet did great course him and Clayton split the driving but 9 weeks after his big surgery I think that is great. Once again thanks I could never have done this trip without you.
sandy mcfarlane[Lornas mum] 8-26-2007
Hi Mark, I just want to say what an absolute miracle Dr Zeegers and his team have performed on my daughter. When she left Australia she was in such a bad way. She had been in excruciating pain for 3 years. She'd had surgery and was on a myriad of drugs. She was told by the doctors here THAT NOTHING MORE COULD BE DONE FOR HER and that she HAD TO LEARN TO LIVE WITH HER PAIN AND GET ON WITH HER LIFE. Thank God she found your site on the net. I know that her case was a very difficult one and she was in Germany for 8 weeks but you should see her now!!! It's all been worthwhile. The children have mum back, her husband has his wife back and I have my beautiful daughter back as she was with her beautiful relaxed smile. No longer does she have that very strained look. So from the bottom of my heart its a great big thank you for letting us all know that there is help out there to be painfree.
Martha 8-23-2007
pinching nerve in the t12 area stays locally not radiating down posterior leg, buttock, but experiencing, cramp, in foot, person is overweight,
christopher jordan 8-22-2007
I would like information on centers in north carolina who do artficial disc replacement surgery
adrian31@hurting 8-17-2007
i am a 32year old man had l4l5 lam. surgery / was hurt lifting a wall an s1 level has hurt worse now that i have been out of surgery 8 months and not working and back has still been bottoming out, testicals get lightly swollen, but VERY PAINFUL FEELS LIKE I HAVE BEEN KICKED / have flexion xray on 08/22 might possably need fusion at s1 but herd about this anyone else in the world have pain like me? Shooting pain. Please help, at end of my rope!
Judy Tuck 8-16-2007
I have had cervical fusion of eht c5, 6 and 7 vertebral discs with anterior screws. I was rear-ended a couple of months ago. I now have a broad-based posterior protrusion with effacement of the thecal sac but not cord. there is also osteophyte at c3-4. At c4-5 thereis retrolisthesis of 4 on 5 with disc bulge and osteopyte formation also have spinal stenosis at this level. I have had a swaying sensation from my neck up, like I was on a ship for the past two months also have severe neck, shoulder and pain that goes down inside part of arm to the thumb, really in both arms which I am not used to in the past I only had left sided pain. Do you think there is a possibility this might get better without surgery. Thank you
Dr. for spine surgery recommendation 8-13-2007
If you need a surgeon I would recommend Dr. Bitan head of spine surgery, lenox hill hospital NY, NY. He did the FDA trial for the charite disc and has been doing many since with great results.
Kara Hanson 8-5-2007
Hello,
if anyone is reading this and has info regarding the Charite artificial disc. HELP. I am a 19 year old Vocal Performance major, I sing opera, but because of my constant back pain I may not be able to advance in this field. I have been in pain for 3 years it showed up my sophmore year of high school and has limited me and depressed me so much. It has taken over my life. Ive undergone a discagram, facet rhizomony, (nerve block) 3 injections, water therapy, land therapy, chiropratics, massage, electro therapy, traction (Lordex) you name it I have tried it. I have been fighting for 2 years with Cigna for the Charite disc bc I have a great surgeon and only one level of DDD. Any advise for me??? I have submitted an appeal and my chances are looking good I feel like I have no choice, because I have already been detoxed of morphine, I can no longer take pain meds, and you my fellow back pain sufferers can imagine what its like to not have meds.
HEEELLLP
kim b 7-30-2007
1 year post op L-4/5 fusion with Charite ADR L3/4 (Dr, Bitan=hybrid). Just stopped in to read up on outcomes of cases like mine. I have a mild scoliosi as well.
Mark Hobratschk 7-29-2007
Disability advocate
gary/ispine 7-10-2007
oh yea, i forgot(guess i had a senior moment) so how about a summer pot luck Mark? a get together of old(although i don't feel old)and new
gary
/nomorepain@ispine 7-10-2007
5th year post op 2-level prodisc surgery in the trials(what trials?)now that approval was gained. anyhow, no more back pain, ever, none-zero, WOW is about all i can say...it's been a great trip so far, life for 30yrs with back pain, In 25 yrs i'll be saying 30yrs no back pain, woooooowhoooooooo!!
gary
Pain and more Pain 6-26-2007
I am 28 years old, and I have pain from the miidle of my down to my left leg. I have been in pain for 2 weeks and doctor only gave me ibruprofin and said I will better in 2 to 6 weeks but only gave me medicine for 14 days. My pain starts at my lower back and runs down my left leg, also my butt cheek and leg fall asleep I get real sharp pains when im basically doing anything. I looked up my symptoms and it seems like I have something wrong with my disc. I need to know will surgery be the only answer?
barbi miller 6-20-2007
i am a 38 year old woman who at the age of 18 broke pelvis. unforunately the dr.only took x-rays and felt p.t.would would fix it.all i wanted was for them to fix me. i loved my job!!! i did as i was told, i also signed a paper stating, i would not take legal action, if they fixed me or retrained me. aprox.3yrs of p.t.my condition was not better! l&i requested an i.m.evl.... they noted my right leg had became(3in)shorter than my left and my right buttoks was cavedin. thier diagnosis was that this would all heal it self in time. and that i was a constant complainer a little psycho psychomatic and just need to get over it....i demanded a second opinion!!! dr.colburn in lewiston id. was who had requested the very first m.r.i. and wrote l&i informing them that my pevis had broke and the 3yrs of p.t. had continued grind at the broken cartlidge which had became calsificated bone shares. he all so stated if his pelvis was broke,p.t. it would make him constantly complain and a little phsyco too. 1993 was my first s.i. fussion. instantly i was a new woman. and then 1997 i new something was wrong dr.coulbur stated he had done the best surgry anyone could do and it's all down hill from here.
Mark 6-19-2007
I have bulging disk at C-6 & C-7, have had epideral injection, apply ice a few times a day. Am still in constant pain, with a great deal of arm pain that radiates down from my neck. My neck is stiff, I have been off work for over 1 year. I have seen a neurosurgeon, who suggested surgery. Am wondering if this will relieve the pain, am also wondering why icing the area hasn't helped, and why I'm so stiff.
Barry 6-15-2007
To: Rebecca Belcher 2-24-2007
Itching is a major side-effect of Opiate medications. Try switching to Dilaudid, it often has the fewest side effects. Wire wrapped around your spine would not likely cause surface itching.
ans 6-10-2007
Thank you Mark for helping answer my questions - for sharing your v. broad knowledge over the years.
My Best - Allan Shanfield
pallman 6-6-2007
l like the guestbook
Gail 5-29-2007
I had fusion L4 L5 with fusion, laminectomy and disectomy. It has been six weeks. I am doing great. I so have pain and probably will continue to have it for a couple of months. I take minimal pain medicine. I do walk alot and try very hard not to lift. I hope it continues. My MD and his nurse practioner were awesome. I'm writing because you need positive reinforcement.
Mike Murphy 5-15-2007
I had ADR with Dr Bertagnoli in Germany 8/31/04 @ c6/c7. The results have been fantastic . I can actually nod my head now ! my neck wll never be perfect but I am much improved .
LISI 5-3-2007
My husband is going through a lot of lower back problems. He is 30 yrs old, when he was 18 he injured himself then found out he had Spina Bifida Occulta. He has a herniated disc, bulging disc, and DDD. He has been seeing this great Dr. in Florida but there is little for him anymore to do. He has gone through all the steps he needs to do. He's been on morphine and percocet for about almost 4 yrs now. The Dr. just changed him to Oxycotin and upped his percocet. This scrip is not working. So we have another app. w/Dr. next week. But for now we are told to start looking into a Dr. that can do disc replacement. I have been and found some Drs. in Florida but I would like to get some input from anyone that has had this surgery done looking at the SB Charite III Dynamic Disc Spacer or one similar to it. Please help us find a great Dr. and inform us of your own experience with such surgery and back problems. This would help us out greatly. Thank you all. LISI
cathy ullmann 4-13-2007
ihad disc surgery in 2003 and in 2005 had 6pins and 2 rods put in my back and am still in a lot of pain, had the L5 and the L4 DONE,WHO CAN I SEE FOR HELP
ClassicZippo 4-11-2007
Jim from Ontario
I don't know of any in Ontario - the one I was referred to only does 1-level. However, I am aware of two in Quebec. As Health Canada has approved multi-level, OHIP will cover cost of surgery.I joined the forum today. Come on over and get in touch with me.
Jim from Ontario 4-10-2007
I need the names of neurosurgeons in Ontario who are the best at back surgery, including multiple Artifical Disc Replacement. I'v had a laminectomy before on L4 and L5 and I have major problems now with L4/L5 and L5/S1 My doctor doesn't know who to send me to and thinks no Ontario surgeon will touch me. Help please, I'm in a huge amount of pain
Mr Z 4-6-2007
looking for help - 3 back fussions - still lots o pain - on my 4th Doc - thinking pain and not being able to walk much is what i have to look forward to.
MEDTRONIC PAIN THERAPIES 4-5-2007
I have a close relative of mine considering having the MEDTRONIC DEVICE implanted for pain therapy..I would appreciate any kind of feedback and or testimonials from those that have had this procedure performed.
Thanks
Rose Machin 4-5-2007
its been 2 years since my knee replacement should I consider redoing my knee my balance is off and it hurts it hurts more now then before
Carol Snead 3-29-2007
In the O R,seeing the X-ray as the Dr. was preparing to do a nerve root block. I could see on the TV screen that a disc was not visiable between the two vertbrate. This was th 4th block. I have severe pain down both legs and into the feet.
Aaron Nelsen 3-27-2007
I have terrible thorasic pain and I just cannot find enough info. on it can anyone advise me where to look? Has any one had surgury for ruptured disc in thorasic? do they make adr for thorasic? I am evaluating fusion vs. alpha klinik arthoscopic but the lack of info is frustrating.
dude 3-25-2007
I just had ADR on 3/13/07 and the pain in my back and legs is more than before. Is that common and if so how long it takes before I feel some improvement since the Dr. guaranteed that the surgery succeeded.
lynn 3-17-2007
I was injured from work. I have been seeing a orthopedic Dr. I had an MRI but the test show normal except for the slight vortex right thoracic culvature. I dont understand why im having so much pain. Can anyone answer this please?
Flip Shafer 3-15-2007
I need info about leg pain due to back surgery
Steve Norrie 3-2-2007
I wuold like to contact Mark for some help. I have L3-4 and L4-5 disc's with holes in them and DDD and suffer from continious severe pain. The US cannot help and I need to look at other places. Can anyone help me.
Steve.
nerve damage and weakness in foot 3-1-2007
In had spinal fusion in my lower back about a year and a half ago. I don't have pain in my back. I am not able to pick up heavy objects. The problem is that I can't use my left foot. It's stiff, can't flex my ankle up or my toes. I have to get up doing physical therapy every morning. I have to wear a brace because that foot is weak. I use to walk on the track and i miss doing that. Has this happened to anyone and what did you do to improve your ability to walk? It is depressing!
GMCY
Rebecca Belcher 2-24-2007
You all sound like me. Had anterior fusion 3 level 4 yrs ago. 2 screws fell out. (Cadaver bone) Had 2nd posterior fusion. Neuro left front crap in. Fused 3 4 5 6. Was told it would hold 10 yrs. 1.5 yrs later another fusion. Was supposedly a nerve decompression which turned into taking out old posterior crap and redoing 34567 and T1. Major hospital in OHIO. Problem is I am terrifically allergic to nickel. Had allergist test for titanium via skin and I was okay. BUT, this third surgeon failed to NOTE nickel allergy and put in stainless steel wiring around c7/T1. Now, I know stsinless contains approx 20% nickel! He was ADVISED of my intolerance to this metal but FORGOT!! Now am having problems w/ itchy and pain at site. Asked neuro for surgical instrumentation and he is a tad slow (3 months giving me info) He is adopting a wait and see attitude. Attorney friend says go see allergist, BUT THEN WHAT?? Anyone have allergic reactions due to nickel in wires, etc. Also have a damaged C8 nerve that I did not have PRIOR to this last fusion. This is a major top 5 clinic! I am sick and tired of it all too. I've done the 40 visits to ER in the beginning to get pain med because neuro so afraid of narcotic litigation so close to his retirement. Had 2 surgeries not even need before proper diagnosis for first fusion. Am I nuts or what? I've got a friggin MBA and sometimes I feel I am desling w/ bunch of morons. Have been told it's too late for any new studies for me. Has been going on since age 40. Shouldn't this neuro have NOT used the stainless steel. If this is one of top 5 clinics; we are in BIG trouble. They are all so quick to protect ANY liability on their part and information by neuro is doled out on a need to know basis or I researched it to ask and he has to answer because I am fairly intelligent. I think I have a legal basis here. WAS on my wrist and chart. NICKEL allergy. But then, most times you have to die to get any recourse. Comments? Allergy Problem and what did you do. I get so tired. God bless you all and hopefully YOU can benefit from new research. I am stuck!! I UNDERSTAND where you come from. They are protecting their rear ends. This last surgery was over $200,000. I am close to 1 MILLION now.
And still taking pain pills and itching now too!! Pain in the neck in Ohio!
thomas 2-19-2007
over the last 6 years i have had to spinal fusions...first was the c3/4, then 4/5 & 5/6. now i am in need of another surgery...i am getting knotts in my back and neck, causing pain, numbness in my finger tips/hands, and in my toes...what are my options...i need to provde for my family as i do now...i just had a newborn and i also have an 18 month old, and adopted a 15 year old. my wife stays home and takes care of them. i am afraid that if i were to have another surgery w/fusion, that i would not be able to drive to work, for work, or do other duties required for me to stay working. i would like artoificial disc relacement to alleviate pressure above and below my fusions but i am not sure this is a good option. i am very motivated! help...anyone?
L4-L5/L5-S1 2-17-2007
I am a 49 year old male with DDD and bulging between the L4-L5 and L5-S1. I've had other procedures on different parts of my body over the years (Prior Marine) and always research each and every process. This has become mind boogling when it comes to the lumbar.
But, one thing that has been told to me by more than one healthcare professional is if I'm going to have the work done, I need a Nerosurgen and NOT an Orthpod. They, the surgeons never seem to sing the same song. One surgeon says 'Well, your discogram showed DDD so the best we can do for you is send you to a pain management firm."
To me, that's not an option. I'm young enough to still be active and old enough to enjoy my two grandchildren. Plus, a surgeon doesn't realize how much ground he loses by telling a Marine, sorry, can't help you.
This site has been my first "off the radar" effort to explore options. And I view them as: Dynamic Stabilization Fusion (Sounds like a great idea for a middle of the road approach) RFA Radio Freq Ablation (doesn't sound progressive, only helpful, at best.)
As for disc replacement? Seems there are ALOT of them out there (company brands). Concern? How to convince the NeroSurgeon to use what's best, not what kicks back the best. ProDisc ADR? Maverick ADR? Cedrvicore??? Or the "Great Value" Brand? :)
Remember folks, a sense of humor is important too and yes I'm in alot of pain but am getting tired of the Hydrocondone 7.5's and Skelaxin Muscle Relaxers. The difference between an orthopod and nero? When the Orthopod did my discogram, he would have SEEN the programs and suggested an Epidural Shot to hold me over until surgery, not PAIN PILLS. A Nero would have taken the route of the shot.
I have two full policies so it's not an issue of money, it's an issue of wanting the best quality of life; yet not knowing all the important factors to arrive at the correct decision for what's going to "work for me". :( Frustrating! What's the best proven technological option that is proven and is available? Responses are more than welcome! And Mark, feel free to WEIGHT IN please, thanks in advance for your consideration to my request(s)!
callmejane (www.ispine.org) 2-11-2007
Dear Mark,
We consulted last July--I emailed you MRI's. I had a very successful surgery last August w/ great recovery so far. My surgeon is wonderful! Thanks so much for all your advice last summer. I'll post more in iSpine later.
callmejane
ron 2-9-2007
just had c-6 c-7 spinal fusion everthing is great excpt they pulled my right vocal cord and now i have to see a ent doc.
Brandy from Alabama 2-7-2007
I had a Cervical Fusion on C5C6 and I was also informed that I have a spinal condition with degenerative disk in the lower lumbar spine. I would like information on this and alternatives in constant pain EVERY DAY and NO help!!!
NELLA 1-26-2007
I HAD CERICAL SPINE SERGURY FOR C5 C6
Andy from Michigan 1-24-2007
S DENNIS I am considering going to Germany. BCBS denied me. DDD 3/4 4/5 5/S1. Please help w/ any info
kishor 1-5-2024
I am suffering from tingling legs and slight back pain, MRI report says that L3-L4, L4-L5 thecal sac are compressed and there is degenerative changes noted in form of margial osteophytes and Schmorl's nodes at multiple levels . There is evidence of lumbar canal stenosis,causing compression over the traversing nerve roots. can any one help me in my treatment? Where can I go for the best treatment? I cannot go out of India.
maria 1-5-2007
I took lyrica 50mg for my right leg pain and physical therapy ,pain is gone.
Still doing my exercises from therapy at home to make my muscles stronger.
Vickie C5-6 1-4-2007
I was rear ended at a red light and most of you know the routine I went through. I have seen a number of doctors, including a cyro that made it worse and 2 neros and I finally demanded a orthopedic surgion and after 3 MRI taken and a year of my life. My lawyer waisted alot of my potental recovery money on visits to neuros and his friend the cyro also. Well, I had the C5-6 cadaver bone, plate and screws put in and I was one of the lucky ones as the pain that was constant decreased to almost 0. The insurance coverage from this guy ran out as he only had 100,000 and its a no fault state I live in, but at least I got a got doctor out of it. It has been 3 months now and I am starting to exercise some because I gained alot of weight during the last year and a half beinbg frightened andf hurting all the time. But there is light at the end of the tunnel and his name is Dr. Zak of St. Petersburg, Florida. I believe the hospital charged 28,000 and the doctor charged 30,000. for my neck surgery. I had to settle for a small amt. as that was all that was left but I do have a fairly good neck now. (I think, it sometimes clicks when I take a deep breath,and sometimes I need some tylinol) I have notiiced that the cyros and neros are slower to treat these problems - maybe this is due to the outragious amounts of money charged per visit? I do think so and their rounds of cortozone and pain pills are just another way of making moneys while not fixing anything. Good Luck to you all. If I need another op I have to go on disability first as my savings got eaten during the year and a half of this process of recovery.
David 12-31-2006
Has anyone had any experience with a Dr. Jho? He is a surgeon from Pennsylvania. Thanks
David 12-31-2006
A few people here have had their surgeries done in Austria and German.<br><br>Where are these places please?
Syed Usman 12-24-2006
Dear All,
I have been diagnoised by neurosergens after seing the MRI report. I have cervical spondilosis herniated discat level c4-c5, c5-c6 and c6-c7,with nerve root compression on right and left. I have dull pain on my neck, shoulder plates, arms and wrist, and numbness on my thumb, index finger and middle finger on both sides. Doctors have referred to Microdiscetomy with fusion and plates and bone graft. I have decided to go for surger after 2 weeks, but scared. I want your opion and especially from patients who have under gone mirodisectomy for cervical
DAVID WELLER 12-8-2006
1ST SURGERY FUSED C6-7 SENT ME BACK TO HEAVY LIFTING AND I RIPPED THE REST OF THE NECK. 2ND SURGERY DR TOOK WRONG DISK OUT AND NOW THEY WANT ME TO HAVE A THIRD
David, David W (adrsupport) 11-21-2006
Mark,
I just wanted to personally give you my thanks for providing such a useful service for us cervical and lumbar patients!
Although it took me about a year after requesting your help to finally make my decision, I just thought I would drop you a note and let you know that I havd L4-L5 and L5-S1 Prodisc surgery with Dr. Bertagnoli in Straubing, 7 days ago (I leave this coming Saturday).
To let you know, the difference is like night and day. I have very little incision pain, and my back pain feels like typical muscle irritation and stretching that occurs from my daily walks here in Straubing. If I feel this good 7 days after the surgery (and 's low and steady wins the race'), then I can't wait to see what I feel like in 6 months (I would love to think that I might even been able to ride motorcycles again!)
Without your help, guidance, and consultation, it would have taken me a lot longer to figure out which path was correct for me when it came to my lumbar spine!
Again, my thanks.
David W
Rick Houghtaling 11-20-2006
Mark,
Thanks again for everything you have done for me. Being 2 yrs post Op next week and being able to thank (you) and Dr. Zeegers personally yesterday was fantastic! Thank you for the get-together/presentation at your home and the time and energy you spend in getting people with spine problems and doctors with solutions in the same room. Your hardwork and tenacity is appreciated far beyond what you will ever know.
Thanks again.
Rick
Catherine Bradley 11-12-2006
Mark, we're wondering why everyone's "pushing" the Pro-Disc instead of the Charite. We know your surgery was successful, but we had hoped to be able to have the Charite surgery. Would anyone care to respond? Thanks.
lori a. beaule 10-23-2006
hi . i have a very serious question i would love you to answer.10 years ago i was told by a neurosurgeon that i had herniated discs at t1,t2 -c5,c6 and that if i wanted them to operate that i better get my affairs in order because i would not make it through. he said there was 80% chance that i would be parellized from my neck down.now recently i had some tests done and they found that well this is what is on my test papers. there is no loss of vertebral alignment. there is some spurring and evidence of early degenerative disc disease at c5, c6. the disc spaces are well maintained. and cervical spine,c5,to t2 was obtained. there is no bulging or prolapse at c5-6, c6-7 or c7 or c7-t1. at t1-2, there are prominent posterior osteophtes at the vertebral margins with a moderate anterior impression of the thecal sac at this level.and at c5-6, there is some minor osteophytes at the vertebral margins. there is however no thecal sac impression. now my question is is this bad do i need to have an operation. how long should i wait to see a doctor. i live in canada and here you wait along time to see specialists.should i try to get in as soon as possible.today i had a weird thing happen to me .i had uncontrolable shaking and twitching and body jumping all over the place. i had no control of my body.it happened to me 3 years ago, and now again today.then it happened to my whole body except my mind.today it was just my left side and my mind was clear.my shoulder on my left side does not feel the same as the other side.it feels like numbness and needles poking me.my shoulder has raised up close to my ear and i look lopsided.and i keep tipping to my left and i always have to grab for the walls or the counters. is it getting really bad. should i go through emerge to get help ,or do i have time to wait 6 months to a year before i see the doctor.i am very scared. and i don't know what to do. please help me figure out what to do. thank you for listening. lori a. beaule. my e-mail address is loribeaule@hotmail.com
shellie 10-22-2006
I had a MVA 9/25/05. The other drive was on her cell and ran the red light. I went to ER via EMS and then spent 9 months of my doctor sending me to PT, chiropractor, and back to PT. The doctor did a MRI of my lower back and not my neck that I have been screaming about even in the ER and the loss of use to my arm and my legs buckle and swell really bad. The MRI of my lower back (5 months) after MVA showed my L4,5 disk torn. The x-ray of my knee that was smashed into the stiring column (7 months after MVA) showed a remote healed fibular fracture. I still could not move my head and just started being able to peck out a few letters on my key board. After 9 months I fired the quack and started seeing another doctor who sent me to a neuro to do a nerve conduction test that came back normal. Then she sent me to pain man doc and he demanded a MRI of the cervical area. It took a few months to fight the red tape of medicaid and when they did the MRI 9/20/06 they found a spinal cord compression at C5,6 T1,2 and T2,3 with a myelomalacia or spinal cord cavatation in the T reagion.
I have 5 questions.
1. Since I had no symptoms of any problems till the MVA of this is it safe to say the MVA caused it?
2. Since my first doctor screwed me around and did not do a MRI when I was still complaining about no ability to move my neck or arm 3 months after the MVA is it clearly malpratice?
3. Where do I find a doctor to review my medical file that can and will give me the answer on malpratice?
What type of evedence do I need to prove malpratice? I honesty feel that, that doctor should not even hold a lic to clip dog's nails. If he would have LISTENED to me and tested me and listened to the PT who told me not to come back because PT was to help not make it worse. I would not be facing so much damage to my body and praying that it can still be fixed and that I can get some function back to my arm and neck and less pain.
I just turned 40. I have RSD in my left ankle. Until the MVA I have had a cracked wrist on my left at the age of 16. I cracked my tail bone when I was 33 snow sledding with my kids. And filpping a huge corn spider off my hand cracked 2 bones in my hand from hitting the side of the house at age 34 the sucker jumped on me while I was planting roses by the house.
5. I have full body bone scans and MRI's from when they diagnoced me with RSD. Would it help prove that I did not have this C and T area problems before the accident?
Any answers would help.
Thank you shellie19662001@yahoo.com
lORNA 10-14-2006
hI EVERYONE JUST WANTED TO SAY THANKYOU TO MARK. i had some queries about the guestbook and he answered them straight away! Thanks Mark, I really appreciate that you took the time to answer me. What Mark has created is great as it is SO IMPORTANT to feel like you are not alone in your pain. NO you are not some strange medical freak!!!! You Have spine problems that so many others have and understand and thatmeans so much. THANKYOU MARK and CLAN for your patience and commitment!
Paula 10-13-2006
After a car accident in July of 2005 and a fall in August of 2003, and seeing variety of Doctors to treat pain and looking for a surgeon that will treat my L4-L5 that is half way into my spinal cord, I understand every one of your stories. I am only 42 and I used to be active, healthy and a tax paying worker. I have a master degree and feel I am intelligent. But most Dr.'s I have seen for this problem just say it is inoperable and leave the office without telling me why. My pain Dr. finally told me it is because there is a bone spur sticking into my spinal cord that they are all afraid will cut my cord and paralyze me from the waist down. However, the pain is so great daily even on pain killers, it has landed me in bed and I hardly go out. I can't walk or do my housework. It hurts to even drive due to bumps in the road. Chiropractic helps temporarily as do spine injections and neutotomy of the facets, RPN spinal nerve burning which really hurts while you have it done. Only someone in terrible pain would do this proceedure. I was ok until I had the second fall in August of 2006, I could no longer work and lost my job. I would suggest to anyone with painful spine problems after an accident is get a lawyer right away, take photos of the area where you were hurt (a trip or slip and fall) or car accident and take your case to the courts for all you can get to get medical treatment. You will need it. Also, heat does help when combined with Ben Gay and a pillow under the knees. Oxycodone, Carisoprodol, and Nabumetone will help. But they only last about 4-5 hours. I have spinal stenosis, DDD, 4 herniated discs in my neck, arthritis, and my L4-L5 is shot. Warm baths help too. I finanally went to seak assistance for a new treatment called minimally invasive spine treatment at a local Dr. The Dr. was more concerned about money than me. His office gave me a run around for over 3 weeks, until my attorney wrote them a letter. When they would not respond to him, he told me to find another surgeon that did the same procedure. It is supposed to be 80-87% successful in releiving pain. Do not try to go to your family physician for pain meds. go to a Dr. that specializes in chronic pain and get SSI SSDI and try to get on section 8 even if they do give it a long waiting list. Be ready for many battles to get what you want and use your local community list or referal center to get any aide you can from your state and federal programs. The pain drives you a bit insane to be honest. You go through bouts of anger to crying to fear and back again. There is so little they know about treating the brain or the spine yet. Microdiscetomy if it is available for you do it. But we may have to wait for America to catch up in laser spine treatment technology to be able to get it, afford it and not be taken by money grubbing Doctors. I am attempting another visit to an Orthopedic surgeon. This time however, I had my MRI sent in to the Dr. and had my Medical records from UW sent to him to evaluate to see if he would take my case. This is better than waiting to see a Dr. for hours being charged to only be told that he/she won't do it. A dr. Perry in tampa florida does all sorts of laser spine treatments. just go to the site laser spine institute. It was too far for me to travel and so far my family will not help pay to have me fly down there to get the surgery. But read the patient testimonials and you will see that they have helped countless people. There is one in Texas too. They just are not all over the country yet, and Medicare is so far fighting Dr.'s and making them wait for payments, so if you have little money it is harder. If you go in saying you have a personal injury claim, Medicare will make you wait 120 days before they will pay your Doctor, which does not motivate the latest I saw to work on you. They use either lasers or water jets to cut the disc away safely from the cord which could cure your pain. I have many problems with my back and am just waiting for them to get someone in there that will be certified to do the surgery. In the meantime I am broke and struggling with my minor son and in pain daily. I have a state program who sends me people out to help clean and do shopping for me or cook or take me to Dr. apts. CNA's they are called. I went for Catholic services, but only qualified for 20 hours a week. So I wait and wait for a Dr. to call who will take my case. Dr. Perry called and said he would do it, but I have to find a way to florida and spend a few days there if I go to the laser spine institute. If there is one in your state, check it out. Give them your regular insurance if you have it as primary and Medicare and secondary. Most do not accept Medicaid, I heard by 2008 the Dr. in Bothell WA would be accepted finally. The state drags its heals in helping those when there are other alternative solutions. The procedure has been done in Europe for many years, Germany etc. but only came to america the past 50. They are not in every state. So be prepared to ask for help from family, fight to get treatment and call medicare weekly to get them to cooperate with your Dr. of choice. Just be sure to check out each Dr.'s background, experience and education. Contact the American Medical Association to check their credentials. Working around a spinal cord is a tricky business, and the regular Dr.'s don't want to prescribe pain and muscle relaxers long term because they are worried they will be getting you hooked on them. They are narcotics and highly addictive. I have been on them for 5 months. Whatever you do, even after surgery, have a pain specialist take you down on these slowly so you do not have major withdrawl side effects. This can be very uncomfortable.There is hope on the horizon guys, but I think we all will need for technology to catch up with the needs we have in the states. You are all in my prayers and I wish you luck. If you want to write me you can. I live in Lynnwood WA just north of Seattle and would love a support group for this. I see a clinician every two weeks to get all my frustrations out and get suggestions on how to cope. It helps some. Let me ask just one question to you all, which would be worse? Being in pain all of your life or living in a wheel chair paralyzed from the waist down or even death? We need a solution and Doctors that are straight with us and will help us. But regular doctors will not prescribe. You must go to a pain management specialist once a month for these drugs. Keep looking for a solution a doctor that will take a chance on you. Don't give up. And check into laser spine treatments. I think they are our only hope if inoperable by a Neurologist or Orthopedic Surgeon. Injections are temporary, 3-5 week max. Neurotomy's are longer term, but can't block a herniated disc pain or c spine stenosis problem or DDD totally. I was only allowed 4 injections in one part of my back each visit for 6 months. The neurotomy was perfomed and I was better with that and visits to my chiropractor until my fall in 2006. Just don't give up, you can email me to talk at tadpolepsm@aol.com if you want. I check my mail two times a week, and can only sit up typing for short periods. Still I would love to help support you and get support too. God bless and good luck to all of you.
Paula
louis a ruiz 10-12-2006
DEAR MARK S. MINTZER THANK YOU FOR RESPONDING TO MY EMAIL MY NAME LOUIS A RUIZ IAM LOCATED IN MORRIS COUNTY N.J. DOVER 51 GUY ST.07801 I HOPE TEHER IS WAY YOU CAN HELP ME I SUFFER A GREAT DEAL OF PAIN EVERYDAY FOR THE LAST 4 YEARS OF MY ACCIDENT. IALSO HAVE MULTIPLE INJURIES. I AM DUE FOR KNEE SURGURY ON 10-17-06 THAT IS IF IT DOESNT GET CANCELD AGAIN.
Debbie Rogne 10-11-2006
Please help me I am in so much pain all the time because of my multiple degenerated disc dicease and the pain in my legs and back are too much for me to handle and trying to raise children and trying to make a living cleaning homes. Please if there is a
doctor out there to help me please help me. I am so depressed.
Debbie Rogne 10-11-2006
I have multiple degenerated disc dicese and a have neveve protusions on my legs and lots of pain please if there is anything or anyone can help me please help me it has been three years and my life is not the same. They turned me away at the Sioux Falls
Hospital. Can anybody please help me.
louis a ruiz 10-11-2006
i need a back sergion who takes medicare i have cerical and lumbar disk herniation. doctors give me the runaround and my lawyer theareting to bailout on me putting me under durres. filing complaint. leting publick know beware.investigators will someday catch up with them.then they will face the consequenses.
annette 10-11-2006
I HAD A COMPUTER KNEE REPLACEMENT DONE 4 MONTHS AGO. I'M HAVING ALOT OF STIFFNESS AND PAIN. I ASKED MY DOCTOR ABOUT IT. IS IT COMMON TO HAVE STIFFNESS? THERE IS DAYS I CAN NOT GET UP AND DAYS I HAVE A LOT OF TROUBLE WALKING ON THE LEG I HAD THE KNEE REPLACEMENT DONE.MY OTHER LEG STILL LOCKS ON ME AND WHEN IT GOES OUT MY LEFT KNEE WANTS TO DO IT TOO. I GET LOCK FEELING IN MY LEFT KNEE THAT WAS REPLACED IS THAT NORMAL? PLEASE LET ME KNOW. I JUST WANT TO GET INFORMATION SO I KNOW WHAT TO ASK MY DOCTOR WHEN I GO BACK AND SEE HIM. THANKS FOR YOUR TIME.
Joseph Singerline 10-9-2006
I'm a 34 year old male, had my first herniated disc at age 20, 10 days short of my 21st birthday. Developed DDD at age 26 in the T-7 thru T11 area.
Have had over 21 Epidoral Steroid Injections for the DDD in the past 8 years. I hate asking the doctors for pain meds, I think that they all think I'm a drug seeker looking to get high!!
I moved to a new state to finish school and had to finally go to a new back doctor. After ANOTHER MRI he sent me to the Pain MGT doctor he uses. After 3 Injections and 4 months later the pain is back and can't have another series for 2 more months!!!! I am at the end of my rope once again. These guys know my background, have seen my reports from other doctors. I am soooooo frustrated with the medical community, pain killers were made for people in PAIN!!!! I don't care if some loser drug addict came looking for pain pills yesterday!! If the Epidoral Injections didn't work, I need some kind of medicine that kills PAIN!!!! <<< edited by GPN. >>> I have heard that there is a new proceedure out there, one where something is injected into the disc, making it like new. I don't know, i caught a news report at the last minute it was on. Are there any doctors out there that actually care about people in TERRIBLE PAIN?!?!!? Sorry to ramble on, but damn it, I can't stand it anymore!!!!!!
Sandie Darius/Spinal 10-6-2006
I have had back surgery. My Doctor had to go thru my belly to remove titatium cages from my spine. He replaced them with a piece from my hip, screws, etc. This was 2 years ago and ever since my left side of my abdomen has a terrible buldge and my bely button is off centered. To look at me it appears that one hip is higher than the other. Needless to say, my self confidence is very low. Is there anyone who can advise me of any doctors who might be able to repair this?
Diane Takacs 10-1-2006
My email was wromg in my last submission. I have terrible lower disc problems and I'm looking for so help
Diane Takacs 10-1-2006
I have been suffering with low back pain even done my legs and so far I have not had a relief even afeter several no invasive treatments This has been going om for 10 years and I really need to get my life back. I can't stand for any time and I'm in constant pain
sherri spisic 9-30-2006
in response to Carol and anyone else with disc/joint problems. I was in a car accident three years ago and now have permanent joint damage in my neck, my doctor is into new proceedures and I trust him with my life. I have had a proceedure called radio frequency ablation done 2 times now and both times it has resolved my pain. This is a burning of the nerves attached to the joints/discs with the damage. You will no longer feel the pain!!!!! Without this being done I would never have made it through the last 3 years!!! I recommended it to a friend who"s girlfiend was off work for 5 years due to disc problems in lower back, she had it done and was back to work full duties!!! there is hope to deal with pain, but only if you have an open minded doctor. This proceedure is done through a clinic in calgary AB anyone wanting info can contact me at dinotye@shaw.ca for more info
Sandy Mcfarlane 9-28-2006
My daughter Lorna, had spinal surgery after an awful accident at work. She is 34 years of age and has 4 children . Every day is a battle for her to get around. She had a Maverick prosthesis inserted which has not been successful. She is virtually a cripple and it breaks my heart to see her in so much pain. She is going to have further surgery in October to have a spinal stimulater inserted and I pray that she will get relief from pain to have some normality in her life. She was a registered nurse,a very vivacious girl, full of personality who loved and lived life. She was always very active in her community and nothing was a bother to her. But now she cant sit for more than 10 minutes or stand for more than half an hour without being in terrible pain. I feel so frustrated that they can send people to the moon but cant give my daughter some quality in her life..... Sorry just had to vent my frustrations , hate seeing my girl suffer so much.
Sandy Mcfarlane 9-28-2006
My daughter Lorna, had spinal surgery after an awful accident at work. She is 34 years of age and has 4 children . Every day is a battle for her to get around. She had a Maverick prosthesis inserted which has not been successful. She is virtually a cripple and it breaks my heart to see her in so much pain. She is going to have further surgery in October to have a spinal stimulater inserted and I pray that she will get relief from pain to have some normality in her life. She was a registered nurse,a very vivacious girl, full of personality who loved and lived life. She was always very active in her community and nothing was a bother to her. But now she cant sit for more than 10 minutes or stand for more than half an hour without being in terrible pain. I feel so frustrated that they can send people to the moon but cant give my daughter some quality in her life..... Sorry just had to vent my frustrations , hate seeing my girl suffer so much.
lana 9-27-2006
does anyone know if bcbs of nc has paid for any artificial disc replacement? I need one and they denied it. Does anyone have any advise?
Lorna 9-26-2006
Hi
Think this sit is good for people to feel like they are not alone in their pain but I think people need to respond to each others enquiries!!! Doctors and other staff tend not to listen to us so we at least need to REALLY listen to each other! In response to DAVID (7/7/06) The knee joint pain that feels like cold steel is exactly what I feel and i am amazed at how many people have these similar symptoms post lumber disc replacement. Why don't the doctors warn us about these side affects?? I have tried every narcotic available with no relief at all Hot Packs placed at every site of pain can provide instant relief, I can be lying down with them under both feet, knees buttocks and thighs and l5-S1 site!!!! PURE HEAVEN so just try it and see??
As for JAY (8/02/06) Think long and hard about the Maverick disc replacement. It may work for you but I have had more leg pain since I had it done. If anyone wants any info I can be e-mailed at grima6@bigpond.net.au Sometimes it just helps to talk to someone who knows what back pain is about. For all of us enduring it, we know that unless you have experienced it you just haven't a clue as to the misery it can bring.I am struggling to keep on a happy coping face for my 4 young kids 3-13 and wonderful hubby so if I could just blurb with another back chick or guy it might help me get some stress out of my system!! Anyway, REMEMBER GUESTBOOK WRITERS< DON"T JUST WRITE YOUR STORY, RESPOND TO OTHERS OTHERWISE THIS IS ALL A WASTE OF TIME TAKE CARE, TOMMORROW IS ANOTHER DAY AND IT MAY JUST BE BETTER THAN TODAY!!
Carol Argyle 9-18-2006
I have recently developed debilitating joint pain, have arthritis in back, neck and hips. I was diagnosed with seronegative rheumatoid arthritis a year ago due to pain and deformity in both hands. I retired from Fed. Government in 1998 with chronic health problems, including pancreatitis, interstitial cystitis, interstitial lung disease. I take 3 40 mg. oxycontin and 4 percocet daily which helped until the joint pain became unbearable. I have 4 young children 7-14 to raise. Advice from anyone, I am putting my family in the poor house with medical bills now.
jamie 9-17-2006
hello all........i was accepted into the stryker trial to receive/or maybe not?, an artificial cervical disc between C5-C6 in about 60 days. has anyone out there received the disc(or regular fusion), and how was your experience in detail?....somebody please help me with my severe anxiety and let me know what happened to you with your procedure?....should i go through with it?....i am really freaked----please email me at jamiedottcom@gmail.com thank you.....jamie
brian theriault 9-15-2006
global disc bulge,disc herniation at l4-l4 level,thickened ligamentum flavum and slight spinal canal stenosis.median and left lateral disc herniation at l4-l5 level and median and right lateral disc herniation at l5-s1 with comperssion on thecal sac and adjacent nerve roots the thecal sac at l1-l2 is from posterior osteophytes and ligamentous calification.
Richard Garcia 9-15-2006
Hello my wife was in a vehicle accident and her doctors state as follows."mild broad-based disc bulge at C5-C6 and C6-C7. Mild degenerative change at C4 through C7. Do you have MRI pictures of normal discs?
susan ledford 9-14-2006
i have gotten a letter that states i have disc buldge and uncinatespurring at c6- c7
can you tell me what this is
also spondylosis at c6-c6and discbulge and facet arthropthy at l4-l5 and l5and sl
can you tell me something about this
Marie Cecelia 9-12-2006
I am 54 years old. At 50 I was involved in an accident and injured my neck and lower back. I was active-mtn. biked, hiked, skied, danced. It has been down hill for almost 5 years now and I've undergone all non-surgical treatments without any improvement. Pain and depression strong. It is my impression that the ProDisc ADR has been approved by the FDA for the lumber but not the cervical area yet. I am awaiting a compassionate use approval from the FDA to have a multi-level cervical ADR at levels C5/6 & C6/7 by ProDisc. Felt it was the best option over the fusion at this point for me. If the ADR does not work out, I can still have the fusion in the future but not the other way around. This option was not available to me locally and I'm traveling to CA to have this surgery. Has anyone had this ProDisc ADR? -- Either the Lumber or the Cervical! If so, I would love to hear the results? I know the multi level Cervical surgery has been done before and I would love to hear from anyone having this surgery. Good luck to everyone searching relief!
Debbie 1-14-1980
I had a Charite disc replacement 8 months ago and was free from pain until now. I have developed severe dibilitating nerve pain in my left leg. After my office visit to the surgeon to get help, he did one test and now won't even call me back to tell me what the deal is. Does anyone now anything about complications from the Charite or other ADR devices?
Shelley Ellis 9-7-2006
Denied again. this time for single level adr and fusion on the other level. Said it was medically unnecessary!!!! thanks bcbs!!!!
Joan Canova 9-5-2006
I've been diagnosed with osteo-arthritis in the 4,5,6,7 vertebrae, there is no cartilege - it's bone grinding against bone, bulging disk, bone spurs, pinched nerve(s). Had an MRI today for further study. Blood work done for underlying condition. I'm controlling the pain with hot/cold packs, Tylenol for Arthritis, chiropractor, correcting my posture. Start physical therapy 9/8 with home cervical traction and exercises. I have problem for 30 years but managed it with anti-inflammatories. Now I have kidney disease so that's out. I'm 60 years old and very scared of this. I have a good job, family and would like to continue being active. The pain was excruciating in March but is now under control (moderate). Can anyone tell me if this always leads to being crippled? If I have surgery, how long does it last?
rosalind 9-4-2006
i had back surgery done in 1994 with four screws in my back after 2 years i started again with leg pain and knees went to the doctor and he tells me there is another disc problem i do not want to do another surgery sorry i did the first i can hardly walk any suggestions that can help besides surgery thanks
jim 8-31-2006
jennifer posted 8/1/2006
don,t know if anyone actually responds to these messages but i will respond to yours
had the c5- c6- c7 fusion cage bone titanium plate screws now the scar not so bad about 3" long not noticeable if you were a shirt with a coller.
but the scar hopefully is the least of the problems have had severe pain in my neck since live on oxy musscle relaxers and antiinflamatorys since
surgery was done feb 2004 went back to work after a year been back up untill last week
can,t take the oain anymore.
my advise make sure there is absolutly no other alternatives first my case pinching the spinal cord.
was told one good jarr and i would be paralyzed
my suggestion ask the doc if you can talk to someone he has done the surgery on
sorry to run on but this is a case of keeping your eys wide open.
not trying to scare you but not any other way i can explain,
mike 8-28-2006
Thank you all for sharing. I have the same 'ol story. Severe DDD at L4/5 & L5/S1 and in lots of pain and on lots of meds. I am 32 years old and in the military...have no kids,but want some. I have 2 civilian surgeons wanting to do double disc replacement with the ProDisc. The government insurance will not pay! Do I fight for it or get the 2 level fusion that they will pay for?
junius clawson 8-28-2006
need information about Junius Clawson - upcoming surgery for me
merbs 8-20-2006
to Barbara, i had a discetomy and fusion c1-c2 and it looks completely natural after a couple of months. the surgeon went in through the front and it looks exactly like a crease..Good Luck!!
Thomas Porter 8-18-2006
My wife is scheduled to have this surgury done in Allentown Pa. in late September of this year (06).
After reading a few of these reviews ours concerns are increased!
She is in a 'double blind' study and may not know which procedure is being performed on her until later. Can anyone tell us the upside to artificial discs as opposed to having two discs fused?? Thanks for any response.
Lorraine Leyland 8-18-2006
Hello I was given this website to have a look at by my spinal surgeon in the UK. I am a 36 year old lady with a history of cauda equina syndrome, I suffer from severe leg spasms and have just been told that my surgeon can operate to try and aleviate the pain. I was really unsure as he had no research i could look at but he did give me this website to look at. I am due to visit him again next week to decide wether or not to go ahead with the operation any advice would be greatly recieved. thankyou Lorraine Leyland
Margarite D'Amelio 8-16-2006
I am in search of a doctor/surgeon who is experienced in disc replacement.MRI confirmed that I have degenerated dics L3/L4 that has for over two years been a source of great discomfort. For the past five days, I cannot walk without great pain. Would like to find specialist in Calgary/ Please your assistance or referral would be greatly appreciated. Regards Margarite
Juan Legido 8-15-2006
can anyone tell me how much does it cost to have a discal hernia repair cost including hospitalization and exams, etc. Thank you!
barbara 8-14-2006
I am having artifical disc put in my neck at c4 c5.how bad will the scar be? does anyone have a picture to give me an idea? surgery is 8/21/06
A W 8-13-2006
I have DDD that effects my L5-S1 and I go to a chiro. every month for an adjustment........I started taking bellydancing lessons two months ago and I am having pain in the disc.......I love to dance and wondered if anyone had any suggestions about this problem. I hate to stop , but, don't want to irritate my back...........(oh so sad)!
Mark Mintzer 8-13-2006
A pantalar fusion immobilizes all three akle joint, stopping movement on all three axes. I'll be presenting Cheryl's case to an orthopedic surgeon who pioneered prosthetic ankles decades ago.
Mark
cheryl t. 8-12-2006
a ankle fusion or a pantalar ankle fusion?
monicas sore neck 8-12-2006
Hi had a ACDF on the 5/6 cervical spine,now having symptoms pointing to the t1 t2? Chest pains and arm pains into the little oinky fineger, woke up and the little pinky finger was numb!! All pain is exaggerated when flexing forward, anyone out there with similar symptoms. The fusion of c5/6 was sucessful, do they fuse the t1/2 together the same way?
monica
Sue 8-11-2006
I was in a car accident on August 25, 2005. After many doctor appointments, I was finally diagnosed with a herniated disc at L4-5 and a bulging disc at L5-S1. My orthopaedic surgeon recommends a laminectomy for the herniated disc. Has anyone had this procedure before? Let me know whether it works and the total recovery time.
cheryl t. 8-11-2006
has anyone had a pantalar fusion?
judy jennings 8-10-2006
i have had 2 lower back surgerys already and tons of shots and pills and i still hurt like h-ll now my doctor wants to do a third surgery and go in thru the front and fuse the dise 4 and 5 i think together and then i will be in a body cast for 6 months. can you tell me more than this about the surgery he wants to do on me? i hurt so bad i fall asleep crying.
S Dennis 8-3-2006
My husband just had the Maverick ADR surgery. He had DDD in l4-l5 and l5-s1. We had to travel to Germany to get it done but it was half the cost and the surgeon and hospital have done 1000's. We highly recommend it. Feel free to email me for any help or additional information. Good Luck!
Tammy 8-3-2006
I have a friend, 34,M) that was just told today he may be in a wc in 4-5 years. He was on steroid therapy to treat ulcerative colitis 4 yr ago. Steroid therapy was ongoing for approx 1 yr. Has had 1 total hip replacementsince and his lumbar spine is degenerating rapidly, therefore, the outcome was given for 4-5 years and he would be in a wc. Is there ANY treatment for spinal degeneration? He is in severe pain all the time and the M.D. advised him sx was not an option. Is it a matter of time until pallative care is all that can be offered? He is also beginning to have difficulty with his other hip. Thank you for your time.
Jay 8-2-2006
Are there any Maverick Artificial Disc Replacement (ADR) surgery stories out there, good or bad? I have an L4-L5 & L5-S1 problem...I reinjured myself after having a successful diskectomy at L5-S1 about 8 years ago...
Joel 8-2-2006
I have degenerative disc disease in my neck. I had c5/6 fused surgically in 1994. Did well for 10 years, but learned last year that c-4/5 spontaneously fused and that all remaining c-spine discs are disintegrating. I am in constant pain. I have been told that artificial discs for c-spine implant are in trials, nearing approval. Can anyone tell me the status? How do I find out if I am a candidate for replacement surgery. I have otherwise lead a very active life and this has shut me down.
Jennifer 8/1/2006 8-1-2006
I have a herniated disc at c4-c5 and a bulging disc at c5-c6.This has been going on for 4 years now. My docter suggests surgery. Has anyone had a similar injury and surgery? What is the recover time for a disectomy and fusion with bone? What ere the pros and cons? Thank you.
Sharon 7-31-2006
I have a spinal injury and was told I must have surgury sometime in the near future. Please send me any and all possible information on spinal injury. Is it possible that this condition and get better on it's own. Should I have surgery and if so how many types are out there. Any information would be very helpful. Just don't know what to do. Thank you very much.
Gautam 7-31-2006
I had slip disc between c5-c6 vertbrae of my neck around 4 months ago.After this I am having pain in my neck with pinching sensation.
From the past few days I am having weakness in my both hands and legs with partial numbness.
I want to know whether I should go for surgery or avoid it for sometime?
SANDRA 7-29-2006
I am in Midland Mich and I would like to find a doctor that does disk replacement in Mich. Could you help me?
James Holder 7-22-2006
I had two disk lamineckamies 19 years ago. They helped some but I had continual flarups usually taking three months to heal. On a relaps use cold the first day heat the next two days. Meds too of course. Then start moving as much as you can. Being still in bed does nothing to help after three days. I recomment physical therapy and smart living. I exercise in a mild streach and reach class three times a week. I pump iron to strengthen my lats and pecks. Strengthening these large musels also strengthens the tiny mussels in my back. I use the best car seat, lounge chair, desk chair, and bed I can fine. Cost is not important. I got smart and stopped playing golf. The twisting and one sidedness of golf hurts my back. That was a sad choice. After the twentith re-ingery, I got the message. No golf. I can now walk for miles and miles with no pain. Running is out. The vibration of running hurts my back. That is sad. It is the way it is.
Darlene 7-21-2006
I have an injury that turned out to be a buldging disc. I have a workmans comp case I have been looking on the computer to see what alternatives I have to correct this. I am seeing an workers comp specialist in August, an orthapedic meanwhile I am in alot of pain I used to be very athletic. Is it necessary to have surgery, or laser treatments there are so many choices that I am very confused. I also had lower back surgery 12 years ago for a herniated disc but in a different location. What do you think is the best method to look into, I want to go back to sports and I am 55 years old female thanks.
ES 7-20-2006
How can i get my Insurance to cover payment of the replacement Disc surgery
Katrina 7-19-2006
I recently loss vision in my right eye. No information has been given as to what caused this problem. MRI AND MRA results came back normal. Please give me information on "Sacordosis."Kathy
barbara owens 7-19-2006
need info about disk replacement
Kimberly Harms 7-17-2006
I had a bad slip and my back contorted unnaturally and I insattnly flet a sharp pain go through my spine and on top of the horrific pain now my internal rectoral muscles and baldder muscle are throbbing and tingling consistanly with other pain flaring up through my body could this be more then sciatica Hoping you can help kim
Sandy Kranwinkle 7-16-2006
I have had the L5 disked replaced by Dr. Junius Clawson. Up until a few weeks ago I have excruciating in my right leg. The pain has now moved from the top of him down to the right foot and the bottom of my foot out to the toes. I have tried heat. I have tried ice pack. Nothing seems to help. I have Methadose, Neurontin, I have had surgery in my L5 disc in January 04, I have had a good experience until lately. There is pain all down from the top of my hip and my knee. Tonight I have pain in my right food, heel, ankle and the Great Toe. It is burning and now pain is going into the same average before and behond. It is on the underside and not it is big areas of my right leg. Please Call Sandy Kranwinkle 801-597-5165.
TERESA STRICKLAND 7-14-2006
Please help me I have a disc pressing on spine don't want to be paralayzed is where I am told I am headed please help. so I can go back to work.
cheryl white 7-12-2006
I have osteoarthritis in my right leg, and it gives out and becomes weak upon standing. I can't walk on some days, what contributes to this?
Dreama Wardell 7-10-2006
I've been to countless doctors for FM. Need help.
Melanie 7-10-2006
I have 2 herniated discs at c5/c6 and c6/c7. The c6/c7 herniation is compressing both the nerve and the spinal cord with symptoms of numbness and discomfort in my left arm as well as aching discomfort from neck through shoulder blade. The c5/c6 is compressing just the nerve with no apparent symptoms. Neurosurgeon wants to do anterior cervical distectomy on c5/c6 with additional surgery next year on adjacent disc due to additional stress on an already herniated disc. I am fairly active..private pilot, scuba diving, sailing and while I don't want to risk my spinal cord I want to know any other options such as how long the wait will be for fda approval on adr here in the US. The trials don't want multilevel damage so that alternative seems out of reach.
Eleanor 7-9-2006
My 35 year old daughter suffered a herniated disk and impinged nerve from a roller coaster. She is interested in the aritifical disk. Please let me know where it is performed and costs.
Debra 7-9-2006
Hi,
After MANY years of back pain hell, I'm now at the point of having to choose a major surgical solution...but I need help in sorting through the maze of possible options for me. Artificial disk?...fusion?...
dynamic stabilization?...which doctor?...cost?...insurance coverage?...etc, etc, etc,......
Whatever I do, I need to move on it fairly quickly, as I only have insurance coverage for another 18 months. Mark, I've heard you are good at this...can you help me?? Any guidance will be GREATLY appreciated.
David 7-7-2006
In response to the person complaining of leg/knee pain, they said it feels like bone pain. I know the feeling. I have a broken L5/pars area, and bulging disks L4/L5. The pain goes through my buttocks down to my toes. It makes my leg/knee joint feel like its joint/bone pain. It also feels cold alot, not cold to the touch, but cold inside. I got hurt on the job as a police officer, and Im having to fight workers comp along with getting bad advice from doctors on what is wrong. My initial doctor advised it was a muscle strain, take some pain meds, and see me in a few months. I went back to work on the streets for 8 months, in pain everyday, until they discovered the break in L5/S1 during a myleogram. I have no good advice for pain management, but when mine really starts to hurt more than normal, i lie flat on my back with 2 pillows under my knee and take a muscle relaxer. It loosens the muscles around my lower back and actually helps more than regular pain meds. Hope i could help.
One so loved 7-7-2006
I would like to know how to contact Dr. Fabian Bitan and any information about his disc replacement for spinal injuries and degeneration.
Jason Kirkpatrick 7-6-2006
I would like any information on what sacordosis is, how it affects one, and any known treatments. THANK YOU!!!
Jason Kirkpatrick 7-5-2006
Just a question...I would like to know what is sacordosis, treatment and causes. THANK YOU!!!
Gloria Jean 7-2-2006
looking for help for a friend
Ssdavid schenon 6-29-2006
do you use makerick disc
(Editor note, David, you did not leave email address for reply. Please contact me via phone or email. Mark
Susan Sclafani 6-27-2006
Hello,
I have been doing a great deal of research but have not been able to find one topic that touches on all my complaints. I was assaulted 7/04 and knocked down herniating c3-c4 c4-c5 as well as midline bulge of L5-S1 and L4-5 posterior bulge. While having these MRI's it was noted an abnormal signal withing the inferior pole of the right kidney was found which may indicate a cyst but furthur testing is recommended. I have told atleast 4 other doctors who have told me it is nothing to worry about some people have many cysts in the kidney and it is normal. I am writing because at night and now during the day I experience excrutiating pain in my hip, low back (right side only) and down to the knee. It is NOT muscular pain. It seems to be pain in the bone if that makes sense. I do smoke and research shows I am at twice the risk of kidney cancer so I am doing what I can to quit smoking. My life is a mess. I take all sorts of medications, of course the ones that releive the pain I cannot afford most of the time but I am very concerned. Can you give me any other advice? A web site? I have an appointment with my Doctor but she says it could take atleast 3 weeks to get the testing I need because I am indigent since the assault. Can someone help me? I cannot live like this. thank you for your time.
Michelle Jolly 6-26-2006
I have 4 ruptured discs and am in constant pain, due to the accident that caused this I have aquired a addiction to pain medication. I am so ready to have my back fixed and to never have to take medication again, if anyone has any suggestions please help.. Thank you!
Donnie 6-25-2006
Do not get a Cervicore replacement disc in your neck !! I am the 2cnd to recieve this disc..it has been 3 months...the disc has sunk down into my C-7 bone. It doesnt do squat. It is killing me. I have 6kids Doctors wont even help with disability claim. But say they can take it out and do fusion.
I said no....They told me the artificial disc would not move from the get go. Me and my family are screwed, because of lies !!!!!!!!
I foung out today that the doctor forced the wrong size disc into my neck..he said it was the biggest one made and I had big bones...he should have stopped when he found out the size was wrong..and done a regular fusion. &$@#$# ^%#$%# %$#$ has anyone else had this clinical trial Cervicore disc put into them ?? please e-mail me
donaldrjames@msn.com
Debbie 6-21-2006
It is considered negligance if the orthopedist inserts the wrong size disc during the initial TKR?
Mary 6-19-2006
Dear all especially TC, I am a dancer as wella dn just underwent the Dynesys Dynamic Stabilization Sytem L$/L5 dis. All pain gone. The intense pressure of that feeling that someine is contantly squezzing that part of the spine has diminished. Now, 3 weeks later, it seems only the top part needs to still heal as it inflames and lets me gives me that tissue tarring type of pain if I bend forward or round he back. However, that will go away with time. I am back to ab work, stecthing on my back, simple plies, tendues, and degages with a simple pirouette barre. I am composing work for my technique classes in the fall where i will be a university professor in dance. MFA at FSU. I can articulate my spine, but was told that i would loose 50% of my flexiblity JUSt in that area. I figured so waht, I can copmpensate, and TRAIN again doing all of peteite and grande allegro knowing I won't rupture my disc any further. i did get the disc shaved last year. Everything was going great, but it took that one slip on the floor, didn't actually go done but caught myself off gaurd, and it sliped again. So, put up with the pain until know more. It just got FDA approved, and i would suggest it to anyone who is willing to do all the PT exercises religiously so the tissue, muscles won't become stagnic. We will see in the long run how it effects my dancing, but at least i can always feel exactly what and where my lower spine is doing...which for a teacher, is actually quite facinating. For everyone i have read, my thoughts go out to you as i can see many in hell.
Regards, Mary
Ashutosh 6-18-2006
I am 30 years old. I have pain in right leg for one yers. when MRI has taken then it was a case degenerating of disc. it was lower most disc. A good doctor refused to surgury and suggested for epidural injection. I have taken two times injection. It releifed one or two months. Now i am suffering from pain. I am from New Delhi (India). What should I do. Please suggest me. I am poor also. Please .......... Help
Thanks a lot
Patsy 6-16-2006
I was injured at work lifting a box from a wrong position-been off for 2.5 weeks had xrays and pt with no luck-I have occasional numbness in my right thigh to my knee and sporadic-excruciating pain in my left si joint. I can't go back to work until weight restrictions are lifted-I think an mri is needed-anyone have some thoughts? Patsy/California
Ramon (Ray) G Ramos 6-16-2006
I had a knee surgery, 3 weeks after surgery developed an staph infection wich settled in my spine.Infection ate away my 3rd vetabrae and some of my bone in constant pain day and night where can I go for help with pain control? can I get help to be well again or come close to having a normal life again? Residein joplin missouri
JoeOlly 4-6-2006
hi i am thirty years of age and had two lower disc replacements last year .I was in a lot of pain and since the operation i have bad muscle pain and need painkillers every day. but i have no other pain .I was told that i could have a active life after the op but i can not see that happening.I worked up to my operation now ten months later i am still off work. I am so sure that had i took ten months off and rested without any surgury i would feel a hundred times better than i do now .Has any had a grat result from this op i would love to have some hope.
Drake / Braintalk 6-14-2006
Impessive webpage. I had a thoracotomy w/ partial corpectomy(?) with cages and a plate at T78 - T9-10. It was a very destuctive surgery which left me in bad shape.Dr. Curtis Dickman did the surgery. I guess I went too long with the spinal cord compressed (2 yrs) to see any real difference.
I have a Pars fracture at L4-5that may be part of the problem, but I turned down a 360 fusion about 3 years agobecause the doc was ignoring the t-spine.
Keep up the good work
Joseph St. Romain 6-10-2006
Wanted to see a surgery being done. Also wanted to see Joseph Kadair's story.
Thanks
Joe
jaymz 6-6-2006
i had a c-5 c-6 fusion and platein feb 05, i was in a car accident a few months ago , someone crashed into me and i suffered another ruptured disc, this time c4-c5 with spinal cord impingement and my right arm is numb, dr says surgery is risky because old plate is scarred into the bone and has to be removed for new plate death or paralysis may result from surgery but he said it is more dangerous to leave it alone, any more trauma and i am in big trouble. i have to make a desicion but i have no idea what to do, i am only 39 and i have children any help would be greatly appreciated thanks jaymz
jay 6-6-2006
ok wow after reading all these stories my back hurts even more now.lol
ready? I hurt my back at work. (I build ponds for the rich. among other outdoor structures.) now I have been seeing a dr for a year now and had just lost my insurance and he kept telling me that Im fine. im young and i just pulled some thing yada yada yada. i ASURED him many times I will pay for an x-ray, mri or what ever needed to be done. honestly when i saked for some pain relif he said ibp and heres some mobic.
i used it and was sick from the two mixing. and go back to work knowing that i lift stuff all day.
so right after the 13 of last month after like the 3rd time in a year that I could'nt move out of my bed ,I said screw this! and got a second.
they sent me right away to get an mri on last wendsday.
i have a crushed L5 and l4 and a sist on my s1!
now im realy screwd huh?
now i need insurance again and maybe a lawer.
what to do
32 sore and confused
Shelley Ellis 6-5-2006
Hi Just wanted to know if anyone with BCBS has any luck in getting reimbursed for adr surgery done in germany? i need 2 levels. also, i think i read somewhere that u have to have a bmi of less than ? is this true and what is the bmi number. thanks in advance for a reply.
Toby Scola 6-5-2006
i am seeking a doctor who will replace l4 l5 and l5s1 for free i live in florida and i am at my last wits i am going crazy from pain in 1997 i had discsectomy lamanectomy and all was fine till i fell in 10-of 2002 now no one will fuse the say it is to gbad my only option is to install artafis/disc
please call me at 954-290-1873 i have all updated paper work inclouding mri x ray pain meds ther etc.
help i am broke and for the sake of god please help me
thanks
toby scla
Lorna 6-5-2006
Dearest Marla please think long and hard about getting a disc replacement done! I am an Aussie and had an L5-s1 replacement (with Maverick Prothesis) in 2005. Post surgery I have had increased pain in both legs like constant sciatica and burning leg pain.
I am a nurse myself and knew that my problems were all stemming from nerve damage. Wether this occurred during surgery i'm not sure but all I can say is that things have gone downhill since! Because the injury was done at work I was subjected to every known therapy or technique. MRIs, Cordal Epidurals, deep muscle injections, discograms, myelograms, facet-joint blocks every single narcotic analgesic available (and the least favourite of mine, per rectal cocyx manipulation), yes it was as much fun as it sounds!!!! PLEASE PLEASE DO YOUR RESEARCH!!! ONCE THEY TAKE OUT A DISC IT'S GONE AND YOU CAN'T GET IT BACK!! I AM NOW UP FOR A SPINAL CORD STIMULATOR OR INTRATHECAL MORPHINE PUMP WHICH I FEEL REALLY SAD ABOUT AS I'M ONLY 34 WITH KIDS RANGING IN AGE FROM 2-13. IF ANYONE GETS ANYTHING FROM THIS SITE PLESE JUST MAKE SURE THAT A FUSION IS NOT A BETTER OPTION FOR YOU. THE DRS WILL SAY DISC REPLACEMENT IS THE NEW THING (YA-DE-DA-DE-DA) BUT EVERY DR GETS A COMMISION FROM USING A PROTHESIS. OK A FUSION MAY RESTRICT MOVEMENT A BIT AT THE SITE BUT IF I ONLY HAD THAT I WOULD BE SO HAPPY! THE BURNING PAIN I HAVE NOW IS WITH ME FROM DAWN TO DUSK SO PLEASE DON'T MAKE MY MISTAKE!!! RESEARCH AND TALK TO A COUPLE OF DIFFERENT DRS.
THANKS LORNA
Lora Befort 6-4-2006
It has been 9 weeks since I had a disk removed and replaced in my neck. I have ad on going pain and today numbness in neck upperback and arms is ocurring. Whats wrong?
bev 5-31-2006
slipping disk in the jaw out of control pain , I need something for pain asap and the name of a DR who can help resolve this.
Marla Schroeder 5-30-2006
I hurt my back in a work related injury in 4/01. I have tried physical therapy, I have had 3 epidural injections, and 2 nerve blocks. With on improvement. I am thinking about a disc replacement. I would love some feedback from anyone good or bad. I live in Northern California if anyone has had it done in my area please give the name of a doctor. Thank you, Marla
joseph morra 5-26-2006
im a 68 yr old male...scan says most discs are degenerating...my problem is the lower most disc that is effecting my left leg..sciatica..dr. says no surgery... ive heard of SHOTS in europe that help with the pain. ive tried inversion,osteo,chiro, any thing new?????
C. H, W. 5-25-2006
I have Fibromyalgia, degenerative disc disease in my all of my vertebrae in my back, I also have developed arthritis in my fingers and wrists, The second joint of my thumb is very senitive. This pain travels to my elbows and my shoulders. I have been told by more than one doctor that surgery can not help. I am taking oxycodonr 20 ER four times a day and oxycodone 5mg 1 to 2 for breakthrough pain. I can not work a eight hour job due to the back pain I have,. I fell walking out of an elevator where they were laying glue for carpet. There were no posted signs and the elevator was not shut off to avoid a accident. Ever since mt fall I have been getting increasingly worse. I can not work a 8 hour day as it takes me over 3 hours each morning to get control of my pain to go to work (hot baths, heating pad, medication, exercise) I am trying had to deal with what I have been dealt, Most of the time I do pretty well. I also have chronic depression, anxiety and panic attacks. also I have chronic optic migraines. I plan to apply for social security disapility. I am currently in the middle of workmans comp.Rigt bow I can work some. about 18 hours every 2 weeks. Does anyone else have problems like these?
Jared 5-25-2006
As far as I know, the Cspine ADR's in the US are on an experimental basis and are not main stream. You will have to look into European Neurosurgeons that offer ADR since the fusion is a thing of the past there and ADR is mainstream.<br><br>Jared
karen 5-25-2006
Odds are you can't just waltz into a Nuerosurgeon's office for an appointment, you would need a sound referral. I waited 6 months before I could get in to see my Nuerosurgeon, but once I was an established patient, things moved rather quickly.
Also, Landscaping is brutal work, lots of bending, twisting, lifting heavy objects at odd angles. Has your son experienced any tingling or electrical sensations in the legs? Heck he might have blown out a disc by lifting something wrong..... How long has he been a landscaper? What I am getting at is that this could be work related injury.
I know that most 21 year old landscapers are generally quite healthy guys, but please inquire with him to see if he has had any odd pains, stabbing in the back or numbness in the legs.
Disc spacing won't decrease overnight unless there is compression via major trauma so the odds of this being a new development is rare.
I know when my disc went bad, the center core essentially oozed out through a massive rupture in the side.... I lost mass, water and eventually there was no disc left between my vertabrae and my disc spacing between the vertabrae was almost completely collapsed.
If you have any questions, please post on here.
Jared
-----------------------------------------thank you for your post he did get a recall and they are setting up an MRI His dr told him that there are many 20 year old with a ittle loss of disc these days his maybe fixable or it maybe minor (cronic pain) and that med. could relieve it I guess he'll just have to wait for the MRI and go for there. oh and yes he has been doing this type of work for a few years now and has had little aches and pains so you are probally correct it didn't happen over night thanks again---------------------------------------
Rita De Ferrary 5-25-2006
Is there a precedent for a cervicl fuion being removed (plates and pedicle screws) and being replaced with an ADR device-with success?
Thank You,
Rita De Ferrary
Jrod 5-24-2006
Karen,
Have your son make an appointment with a Neurosurgeon or for starters a physical medicine doctor. Xrays will show your vertabrae, their alignment and the space between them known as the disc space. If he has moderate disc space loss at L4-L5 this could mean he has a bad disc. The only way to know if the soft tissue (disc) is bad is if he underwent a Lumbar MRI. A physical medicine doctor and/or Neurosurgeon can order this.
Odds are you can't just waltz into a Nuerosurgeon's office for an appointment, you would need a sound referral. I waited 6 months before I could get in to see my Nuerosurgeon, but once I was an established patient, things moved rather quickly.
Also, Landscaping is brutal work, lots of bending, twisting, lifting heavy objects at odd angles. Has your son experienced any tingling or electrical sensations in the legs? Heck he might have blown out a disc by lifting something wrong..... How long has he been a landscaper? What I am getting at is that this could be work related injury.
I know that most 21 year old landscapers are generally quite healthy guys, but please inquire with him to see if he has had any odd pains, stabbing in the back or numbness in the legs.
Disc spacing won't decrease overnight unless there is compression via major trauma so the odds of this being a new development is rare.
I know when my disc went bad, the center core essentially oozed out through a massive rupture in the side.... I lost mass, water and eventually there was no disc left between my vertabrae and my disc spacing between the vertabrae was almost completely collapsed.
If you have any questions, please post on here.
Jared
gayle coleman 5-24-2006
I am now going to have my second surgery for ddd. I had fusion on c4/5, c5/6 and additional procedure to relieve the spinal cord compression. Now 1.5 years later, I have c3 herniation with compression of the spinal cord affecting t2 signals. I also have severe lower lumbar pain and was scheduled for a radio frequency ablation next week, but this was cancelled at my request because I am just emotionally overwhelmed and exhausted with pain, procedures and apprehension! My understanding is that my vocal cords are in jeopardy this time around, and I will be seeing an ENT reconstructive specialist prior to the upcoming procedure to identify which vocal cord is weaker, therefore determining the best approach for incision and procedure. My question is what percentage of patients have permanant loss of one or both vocal cords post procedure of the above mentioned fusion? Overall my health status is not the best, I am a 55 year old black female, diabetic, asthmatic, have mild form of glumerolonephritis, an upper intestinal bacterial infection,and have severe allergic reactions to several strands of antibiotics. However, I am a fighter, and I am still here, wanting to survive this latest round of challenges and preparing myself to the best of my ability.
Please inform me regarding the above question. This is my first visit to your website and I am so fortunate to have found it!
Sincerely,
Gayle.
karen 5-23-2006
my son who is 21 has had lower back pain for some time how finally the doctors took x-rays and report ws that
there is mild to moderate loss of disc space at L4-L5 (mild to moderate degenerative disc disease at L4-L5 what does this really mean as he didn't even get a follow up appointment should he be working he is a landscaper is there danger of damaging more please help if you can.
Monika 5-23-2006
My husband and I have 3 young children, I would like nothing better then to have their father healthy and able to be with them...without pain. After 2 surgeries to remove bulging discs, it has been a rough go. Please let me know what and who we need to see to get our lives back. Thank you.
John Bushey 5-22-2006
Ive had four back sugerys-with five disc removed-And im still walking-But not far or a lot at one time-My medication is allmost becoming useless-I take Durgasic 100 MG patches-and have to replace them every two days-If theres a way i can be put on a call up or waiting list-for anyplace that would insert these new inflatable disc i just saw on TV May 20,2006 ide be verry interested in this-But i know that if its just a expermintail-Then my insurance would not pay for it-So i need to know on what cost will be paid out by the people doing this new study-Can you please let me know-Thank You John Bushey
Darrell Dobas 5-22-2006
diagnosed with (DDD),cervical levels (3-4),(4-5).Have previous fusion c5-c6.Looking to get into clinical trials with either Bryan cervical or Cervitech's PCM. Wearing cervical collar, have neck and shoulder pain,arms will go into paraloysis without neck brace. contact me at dpdobas (at) yahoo.com thanks
George Guttman 5-21-2006
I was referred to GPN by a friend who recommended Mark as someone who help me sort out my options regarding my chronic back problem. Mark was a great sounding board through the entire process. He even attended a doctor's appointment with me. He asked the questions that I would never have thought of asking. When you are going through situations such as these, it's important to have someone there who can help you to process the information in a logical, non-emotional, non-threatening way. Mark's help was very important for my peace of mind as I approached the surgery.
I was not a candidate for artificial disc. I had a single-level fusion last December. I'm now 5-months post-op and doing great!! I got myself in good physical condition before the surgery and really listened to my doctor and physical therapist religiously after the surgery.
Thanks Mark!
George Guttman, CFP
citi-chick 5-21-2006
I have been diagnosied with a csf leak in my T1 T3 i was wondering how do they go about treating this what are the risks and what procedure is done to treat it
Jrod 5-20-2006
For those of you recieving Social Security disability benefits due to low back pain caused by DDD, rupture, herniation, etc. please look into this. This is absolutely fantastic news for you people!
http://www.charitedisc.com/charitedev/domestic/patients/medicare.asp
james potter 5-20-2006
Herniated disc at c-6/c-7 underwent fusion w/plate. now action tremors right ,left arms, right leg. hands not right , us of thumbs impossible do to pain.there are other areas effected left area obove my lip tingles, sharp pain in thumbs and index fingers, wrists hurt. eng shows pinched nerves on right but not left and there are two areas on my spinal cord in question with increased signal at t-2 in the area of the herniation. How do we check the spinal cord itself before I become further injured.
charles parrott 5-18-2006
my husband is a chronic back patient his disc are bone to bone and bulging disc in extreme pain with no relief needs help please get back with me for some kind of help thanks
Jrod 5-17-2006
On September 21st, 2003 I was involved in a car accident that created a rupture of my L5S1 disc with massive fragmentation.
Over the past 2.5 years, I have endured 100+ sessions of physical therapy, spinal injections, multiple doses of medrol dose packs and plenty of narcotics to attempt to mask my pain to know avail.
I have underwent a procedure called a discography, which is the most painful procedure they could possible do to a human being. Basically they put pressure on your damaged disc by injectiing it with an irritant as well as I am led to believe air pressure..... They will magnify your pain x10 in a matter of seconds all just to "physically" prove that you have a damaged disc.
I have been offered the choice of either having a fusion or Charite ADR. I chose the ADR since I am an extremely active individual and have thoroughly researched the topic from all of the European studies where the Charite disc originated.
On April 28th, I underwent an anterior approach, L5S1 disectomy with arthroscopy of the charite III artificial disc. Now, 20 days after the surgery I have no existing pain in my back, but have minor pain from sore muscles near my incision area.
The first words I mumbled coming out from my anethesia haze was "my pain is gone". No amount of prescribed narcotics could truly mask the pain of my back before this surgery, and sciatica was always present as that hot, electrocuting type pain radiating down my left leg.
Success!
I spent 3 days after surgery in the hospital recovering.
4 days after my surgery I did not need a walker anymore.
7 days after my surgery I discontinued use of pain killers.
14 days after my surgery I hit the 4 mile mark in my daily walks.
Yesterday, I had a checkup with my neurosurgeon along with a battery of X-rays. Everything was absolutely perfect.
Some words of advice out there.
I know that the majority of doctors nationwide who perform the Charite artificial disc replacement surgeries are Orthopaedics surgeons and are probably well qualified, I would see a Nuerosurgeon over and Ortho any day. Just my two cents! Alot of surgeons can work on bones and joints, but not very many people have the skills to work on the human brain.
Credentials, experience and reputation played a large part in my decision in choosing the proper surgeon. I consulted with and interviewed surgeons across the states of MN and WI. I also consulted with regular family practioners and found out who they would make a referral to. I even had the luxury of speaking with patients of fusion/adr doctors after I put my name on a contact list with clearance through risk management (following HIPAA compliance).
I am very happy I made such an informed decision on pursuing the Charite ADR procedure.
Also, I will answer any and all questions you may have about everything I have went through covering from pain management to the actual procedure of having the ADR done one me. You may contact me at jared720 (at) yahoo.com
Kind Regards,
Jared
Harvey J. Feenstra D.C. 5-15-2006
I was a canidate for spinal surgery at age 15. Chiropractic care came to my rescue. Disc replacement surgery shows much promise compared to the other forms of spinal surgery.
Alexander 5-14-2006
I have a great website with products and information for people dealing with arthritis - http://www.medsbest.com
Pippa 5-5/2006
Please help me. i was so please to find this site today, i would like to kindly thank every person involed.
Please please help, i have been in my bed for nearly one year now, i am in it 24 hours aday.i am in excuriting pain and have very limited movement , i can move my ankels feet, i have no torso movement, i am contantly heronsonical and have a same range of head movement, i am unable to look after myself, i have only 2 positions i can be in , one one my side with pillows between my legs and the other on my back load of pillows underneath my buttocks. i WASin a wheelchaie for 17 years and now i can no loger sit upatall. i am an only enormous amounts of opiates..i have fusion at the age of 14years..i went into a wheelchair by age 23years and mow at the age of 39 years i am now forty and have never moved from the bed..this has taken me over 3 hours to write this as i have to keep stopping due to unbearable and imorale pain...i have been begging for ads and help..since last year when i got rushed into hspital , i was proised help..i have from nhs in london ,only one test....i have fought so long to stay here stay alive, i do not want to die, i have been brushed off since day one at the age of 4,for 10 years being told i have growing pains.....i am fanciated with the Doctors in germany, their intelligence their intecrity their willingless to actually listen, iwould love to try and come to germany please can anyone help. i can send you allthe poerate articals scan s ect.thanyou for listenig, with regards and respect. pippa hughes . please excuse my wrting , i am so sorry i am rather dyslexic.
David peterson 1-2-2000
I like to know the name & address of an orthopeadic surgeon in London specailised in chest & ribs for my sister.
I will be grateful for your help
luis 5-5-2006
i have a bad disk in my spinal and i was wondering how much it would be for an artificial disk
Eric 5-2-2006
Mulitiple lever herniations: T12-L1 (moderat/severe), L4-L5 (severe), L5-S1 (severe, ruptured). Severe pain originating in L lower lumber radiating into left foot at times to the point I can not walk without holding onto something.
Damaged from mulitple years of pounding in army.
Need information on possible two level disk replacement (L4-S1 )in conjuction with a possible microdiscetomy at T12-L1.
Any options aside from fusion. I am only 39 y/o and in moderate to excellent physical condition.
Best regards,
-Eric
steve 5-1-2006
i live in Los Angeles and i need
to have spine surgery for spinal
stenosis - they say a 3 level lamenectomy- does anyone have any
recommendations for a good surgeon
in the L A area or even outside of
L A - please e-mail me with yo | 
