"After
two failed spine surgeries, three years on opiates,one year of essentially,
a shut-in, I was given a second life!", Mark,
Charité L4-S1, September 2002
|
Caring for a loved one in pain;
the spouse of a chronic pain patient.
Diane Mintzer spoke
at the GPN seminar in New York.
Braintalk
forum post
|
Travel Clients - Mark was Patient Advocate
for Surgery trip
|
Diane
Endoscopic Discectomy
July 2007
|
|
Alan K
Activ-L +
fusion
December 2006
|
|
Sam P
Activ-L
March 2006
updated 06/08
|
|
|
|
|
Jack
ProDisc-C (2)
June 2006
|
Ken
L2-S1 Reconstruction
3 ProDiscs + Fusion
January 2007
|
|
|
|
|
Other GPN Clients
|
Lorna
Too many surgeries to list
|
|
|
Joe K
ProDisc-C
November 2005
|
|
|
|
|
|
|
Cindy W., IT manager from NC.
Successful ADR, but I was still completely disabled.
The first time I met Mark was on September 19, 2002. We were in the waiting room at the Alpha Klinik and we both had surgery scheduled for the next day. After we chatted for a while, I realized that I was speaking to someone who had written a great deal on the internet about his research into ADR. I said, "Oh my gosh, you are RumorSlayer! I used to look for you online. I'd call my husband over. Ed, Ed, he's here again!!! Come read this!"
I was in Munich for surgery because I had disabling back pain, hip pain and foot pain. I was very relieved after my discogram because it so clearly reproduced all my pain. That made me an excellent candidate and gave me every reason to be hopeful.
My first week post-op was incredible. I felt sorry for Mark because he was having such a tough post-op experience, while I was walking many miles a day and sightseeing around Munich just 5 or 6 days after my surgery. I knew just a few days after my surgery that my back pain and my foot pain were GONE!
Fast forward about a year and Mark's in great shape, but I was still functionally disabled. Although my disc replacement solved my back and foot pain, my disabling hip pain still had me unable to function. I was still on large doses of OxyContin. I'd been to doctor after doctor, but none of them had any good ideas. I had been referred to pain management. I was ready to give up.
One day Mark called me up and told me
about someone he met on the Internet forum he'd started for people who want
to discuss non-fusion technologies. He told me that I there was a man
he'd spoken with, who described disabling hip pain EXACTLY like I described
mine. I took Mark's advice and called Brian. Brian had a similar
story, but had found his way a Dr. in Cleveland who specialized in Piriformis
syndrome. I called the Dr. but he warned me that Piriformis syndrome is very
rare and that I shouldn't get my hopes up.
Fast forward another 6 or 7 months! It turned out that I had profound PS. Out of 80 cases this doctor had seen, he said that my case was certainly one of the worst. I had the piriformis release surgery in October of 2003 and by mid-2004, I was riding my mountain bike with my husband, camping, hiking, working full time, back to a rewarding workout regimen (I was an athlete before my disability). I can't believe it, I'm living a NORMAL LIFE! I was ready to give up. I don't know where I'd be now if it wasn't for Mark and his Patient Network. I suppose that I'd still be in pain management, on large doses of opiates and completely disabled. Instead, I have a new lease on life and can live every day to the fullest. With the perspective that you gain from being reborn after such a painful disability, life is even better than it was before I could truly appreciate what it means to enjoy a day without pain!
Thanks Mark!
Tom C., Television Producer from Southern California
"My 2-level,
360 fusion was scheduled... until I called Mark."
Thanks
to information I received from his contacts, I was able to cancel this surgery. Not only would the multi-level fusion caused a lot of collateral damage, but it would not have solved my problem, and could have made things worse! He connected me with other patients who experienced similar problems. They pointed me towards the surgeon who knew how to address my issues. I've
now had ZERO BACK SURGERIES, and my disabling pain is gone!
| |